Zachary J Williams MD/PhD college studentVanderbilt University When Zachary Williams joined the Autistic Researchers Committee of the International Society for Autism Research (INSAR), he that knew one of the group’s priorities would be to promote participatory research — an approach in which scientists work with autistic people and other members of the autism community to […]
Posts Tagged
‘Participatory’
Illustration by Laurenne Boglio Ready for your weekly roundup of autism research tweets? First in this issue of Spectrum’s Community Newsletter, the January 15 cover of The Lancet included a quote from the journal’s recent commission on the future of autism care and clinical research. On this week’s cover, a quote from The Lancet Commission […]
The August launch of the U.K.-based autism research project Spectrum 10K sparked a firestorm of negative comments about the study’s aims from autistic people and their allies. The researchers have paused the project while they seek more guidance from autistic community members. “They’re backtracking and backpedaling furiously, and it was completely avoidable,” says Sarah Douglas, […]
Illustration by Laurène Boglio Hello and welcome to this week’s community newsletter! I am your host, Chelsey B. Coombs, the engagement editor of Spectrum. We’re starting this week with a study on Autism, looking at researchers’ views and experiences of including people with autism in study decisions. Laura Crane, Assistant Director of the Center for […]